Thursday, October 31, 2019

2019~10~31 C4C past few months

A few photos of past few months, no order.   In May C4C Team Alex did 3 awe some rides where 25 of us raised over $10,000 for the Epilepsy Foundation of CT. In early September C4C raised close to $20,000 for the Yale Smilow Ride Closer to Free. In late September the finest of the C4C cyclist rode a 3 day course to raise funds for the American Lung Association (photos and numbers forthcoming). We are a small team with a big heart.  We cycle in memory of those that we lost and in honor of those who survive.  We ride to heal ourselves mentally, physically and emotionally. We ride as we train for fundraising events that make a difference in every ones lives.

2019~10~31 Catching up on past months

A few photos of past few months, no order.   In May C4C Team Alex did 3 awe some rides where 25 of us raised over $10,000 for the Epilepsy Foundation of CT. In early September C4C raised close to $20,000 for the Yale Smilow Ride Closer to Free. In late September the finest of the C4C cyclist rode a 3 day course to raise funds for the American Lung Association (photos and numbers forthcoming). We are a small team with a big heart.  We cycle in memory of those that we lost and in honor of those who survive.  We ride to heal ourselves mentally, physically and emotionally. We ride as we train for fundraising events that make a difference in every ones lives.


Tuesday, March 26, 2019

Steady didnt ride, but knows someone whos getting legs back



In past 3 months we Reduced 4 medications to almost half the dose that we were on.   We Introduced a new medication and his daily events have been cut to less than half the number per day.  We went from not being awake for more than a couple hours a day, to finally getting back to school part time and finally asking for and able to get out doors.
Today was the first time out and around the block since last fall.  We only did about a half a mile, but it was the happiest 1/2 mile I have done all year.  My kids up, he wanted to ride, and he gave it an all out effort.  Lil man needed assistance for about 3/4 the way....but he kicked ass on the 1/4 that he did do.

Doctors scratch their heads and say that medicines don't work, yet as we add and remove we see the varying effects.  We need to find the right mix to get my boy back to himself, and then find the right medicine or diet to get him to zero episodes per day, week, month, year!

Great to see him up a bit, still a long, long, way to go. but through out the summer my goal is to get him better one pedal stroke at a time.


Tuesday, January 8, 2019

2019~01~07 New Year, New Training, Old Jersey

2016 Right Arm c4c for Epilepsy Foundation of Connecticut
2016 Left Arm c4c for EFCT
300 miles later, this should be vodka or gin and juice!

Cycled virtual trainer 310 miles between Christmas and New Years, 115 of the miles were this past week. Cycled virtual circuits in NYC, London and Watopia. Training  in C4C (cycle for cures) jerseys. This almost retro jersey modeled here was of c4cs 2016 Epilepsy Foundation of Connecticut "Sharons Ride". As we (the c4c team members) ride or train in various c4c jerseys we are reminded (by the logos on our sleeves) of the sponsorship for or donations made to the various charities that we feel so strongly about.  

Thank you to all of our sponsors and donors for your continued support.  Our goal is to make a difference in pedal strokes towards finding the cures!!!