Steady didnt ride, but knows someone whos getting legs back

In past 3 months we Reduced 4 medications to almost half the dose that we were on.   We Introduced a new medication and his daily events have been cut to less than half the number per day.  We went from not being awake for more than a couple hours a day, to finally getting back to school part time and finally asking for and able to get out doors.
Today was the first time out and around the block since last fall.  We only did about a half a mile, but it was the happiest 1/2 mile I have done all year.  My kids up, he wanted to ride, and he gave it an all out effort.  Lil man needed assistance for about 3/4 the way....but he kicked ass on the 1/4 that he did do.

Doctors scratch their heads and say that medicines don't work, yet as we add and remove we see the varying effects.  We need to find the right mix to get my boy back to himself, and then find the right medicine or diet to get him to zero episodes per day, week, month, year!

Great to see him up a bit, still a long, long, way to go. but through out the summer my goal is to get him better one pedal stroke at a time.