2020 10 09

 2020 10 09

"The heartiest of plants survive because they weather the storms and never stop reaching for the light". Robert Clancy.

"When a train goes througb a tunnel and it gets cold and dark, you dont tear up the ticket and jump off. You sit and you wait and you trust that soon enough you will see that light at the end of the tunnel" unknown.

-Alex is currently recovering from an infection. Today (Friday) we can recognize him.  On Monday and Tuesday his eyes and right side of his forehead were so swollen that he wasn't able to open either eye, nor could mom and I recognize him.

For the past thirty something days Alex has been frustrated with not yet being able to sit, stand, move his left arm nor leg, nor speak his mind.

- Last night he may have had one or two hours if sleep. This poor little guy is having a hard time. He is "strong like bull" to put up with it all. We are still uncertain of what keeps him up, what aggravates him, etc.

We think that maybe it is because of the ten medicines that he is currently on or it may be because of the hook ups.

He is currently hooked up to three heart rate lines on his chest, the oxygen sensor on his left toe, the intervenius lines in his right arm and the blood pressure cuff on his left arm. Alex needs to get better so that things can be reduced, so wires can come off, so cuffs don't press.

-Today Alex Looks better than he did yesterday. We pray that the two heavy duty antibiotics that he is currently on are working the inside as well as they look like they are working on the outside.

-today Alex has an MRI in the afternoon to confirm what the antibiotics are doing.  We will sit anxiously in a waiting area while the mri is in session and then we will await anxiously on mri results as well as  the results for a plethora of blood draws.

- Alex didnt sleep through the night, so we let him sleep through his three therapy sessions this morning. We do this because he cant be fed until the test is over. We are scheduled for four pm which means that we may only get to testing late night.

-We sit, wait and pray that MRI results show healing in the positive direction.