2020 09 04 Friday Day 29

+Alex is still in ICU "Intensive Care Unit".

+Tuesday he was having a good day but his fever started going up again.

+Alex had a bad Wednesday and Thursday.

+In the last 48 hours, Alex has only slept about 4 hours total.

+He is off if the respirator and lungs look and sound fine. He is on room air and no oxygen required.

+I believe he took about 6 to 7 days to titrate off of his sedation medicines. As he is coming off of the medicines he is becoming more alert and we see more movement.

+Unfortunately, the more awake he is, the more he appears to present as if he were in pain.

+Alex is being treated with potent antibiotics for infections, yet he continues to have a fever that will not go away.

+Alex has a tremor that comes and goes, doctors do not classify it as seizure, so they do not know what it is. All we know is that he has them and medicines given do not appear to stop them.

+right now for fevers, alex is on high doses of tylenol, motrin, 2 potent antibiotocs and a cooling blanket.

+2 nights ago we were loaded him with ice packs by the hour. Today we have a water system running through a blanketed coil. We had it below him before, today we put it over him to see if we succeed.

+The several teams of doctors are all confused at all of these events.

+today we are again scheduled for more blood draws. More urine samples, etc. We are scheduling another MRI to compare this to the last. The mri will hopefully rule out any critical issue in the brain.

+going to MRI requires that he get the breathing tube and respirator again and that he be sedated again.

+We are nervous about all of this but need answers. Our little man has been nothing but strong and courageous for the past 28 or 29 days. He is one hell of a fighter. He has so much more strength than I. He has shown us all how to keep getting up. There is something foreign going on in his body and he is hanging tough and fighting hard until its gone.

+thank you all for your prayers, your positive thoughts and energies.

+please look back to recent dates on the blog for prayers.