2020 09 10

 2020 09 10 Thursday day 35 

Alex Schedule

We are in a quiet room. We have more rest in this room than we were able to get in the Intensive Care Unit.

Alex is still very weak and very tired.

I give Alex Physical Therapy Occupational Therapy and Music therapy every chance that we get a break. We are definitely exhausted and sleep is rare around here. All of the doctors and nurses tell us to get some rest...to get some sleep. I jotted down yesterdays schedule which is almost a typical day.  There truly isn't one time slot where we have more than a two hour break.

When we finally settle in to sleep the nurse in charge is back to push meds into his tube which requires lights, uncovering him, and covid 19 face masked presence within his personal space.  Take a look at the schedule below if you want to see what little man ia dealing with.

+1200am nurse assessment

Blood pressure, temperature, vitals

+1100pm Onfi.

+1000pm clonodine. Sodium

+0900pm cefapiene iv

+0800pm Lamictal. Epidiolex.

Vinpat. gaba. Probiotoc.

+0800pm nurse assessment

Blood pressure, temperature, vitals

+0700pm day / night nurse transition.

+0630pm day nurse clean up and prep for night

+0600pm clonidine. kepra

+0500pm chaplaincy for talk and prayer

+0430pm Neurology Attending visit and review.

+0400pm nurse assessment

Blood pressure, temperature, vitals

+0300pm Pact team. Assuring that we are moving forward. Coordinate between all teams and outside rehabilitation.

+0230pm music therapy

+0200pm Neurology medicine teams review any changes

+0200pm clonodine famotidine

+1200pm cefipine

+1200pm nurse assessment

Blood pressure, temperature, vitals

+1145am Neuro Surgeon review game plan for surgery assure that still on track for september 21st surgery.

+1130am Physical Therapy

Work feet, legs, lower core. Sit up, move to chair.

+1115am speech therapy

+1100am rehabilitation medicine

Review meds and any changes

+1100am onfi

+1030am Occupational Therapy. Work arms and shoulders and upper body

+1000am infectious disease team Review his antibiotics and confirm end date

+1000am clonondine sodium

+0800am neurology team visit and bedside assessment. Review Plan or any change for the day

+0800am lamictal. Probiotic. Epidiolex. Vinpat. Gaba

+0800am nurse assessment Blood pressure, temperature, vitals

+0730am night /day nurse transition

+0645am night nurse. Bedside wash.

+0615am neuro surgery team visit and bedside assessment. Review Plan or any change for the day

+0600am Clonodine. Kepra

+0400am nurse assessment blood pressure, temperature, vitals

+0400am sodium. Cefipeme

+0400am blood work. Urine samples

+0200am clonodine. famatadine

Lord give us strength to get through this . We have a busy schedule, please bring the right people for the right task. May we work together to do what we need to do in order to have a successful recovery. Help Alex to cooperate and receive the therapy ans strength that he needs for the next step toward healing.